epilepsy

Robert's Sister
Blessings, Miracles, Blog Parties and Aha Moments

Blessings, Miracles, Blog Parties and Aha Moments

Note to readers: I am participating in the CareGiving.com Holiday Progressive Blog Party.  There are several people participating, (all of whom have wonderful blogs) and we will be stopping by to read each other’s stories and showing support through this holiday season. 

As promised!
The party starts today and...

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Robert's Sister
Epilepsy Awareness Month Recap

Epilepsy Awareness Month Recap

I thought I was going to take a break from blogging for a day or two after a month of posts but I can’t stop!

Okay, this will be short and there won’t be 30 minutes of video to watch (“Phew!” says Other Brother, who hasn’t quite caught up yet).

When I set...

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Robert's Sister
Epilepsy Awareness Month Day 30: Q & A with Robert and Trish (Part 2)

Epilepsy Awareness Month Day 30: Q & A with Robert and Trish (Part 2)

It is the last day of Epilepsy Awareness Month!  I have learned so much from Robert this month and hope we helped others learn about epilepsy and about Robert. 


I am very grateful to everyone for watching the videos, reading the posts and supporting all of us in our mission...

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Robert's Sister
Epilepsy Awareness Month Day 29: Q & A with Robert and Trish (Part 1)

Epilepsy Awareness Month Day 29: Q & A with Robert and Trish (Part 1)

Robert and I are answering questions for the last two days of Epilepsy Awareness Month. I was worried before starting this project that Robert would tire of doing all these videos but he is enjoying every minute of it!  (I should have realized what a ham he is!)

We had...

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Robert's Sister
Epilepsy Awareness Month Day 28: Brotherly Love

Epilepsy Awareness Month Day 28: Brotherly Love

My first memory, as impossible as it seems, is of my brand new baby brother being carried through the back door of our two-bedroom, white house in Omaha.  We moved out of that house when I was entering the first grade and we forever after referred to that house as “the White House.”

I could...

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Robert's Sister
Epilepsy Awareness Month Day 27: Gratitude

Epilepsy Awareness Month Day 27: Gratitude

Today is a day for gratitude! Richard, Robert and I share what we are grateful for and wish everyone a very Happy Thanksgiving!One impact epilepsy has had on Robert is that it has made our family that much closer.  For that, we are all grateful.We...

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Robert's Sister
Epilepsy Awareness Month Day 26: Epilepsy Rant

Epilepsy Awareness Month Day 26: Epilepsy Rant

I am usually a positive person but today has been especially trying. I realize tomorrow is Thanksgiving and I should be espousing everything I am grateful for.  I will. 

Just not today. 

Today I am on a rant. 

Epilepsy sucks.  It is more insidious than people realize.  People who have seizures lose...

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Robert's Sister
Epilepsy Awareness Month Day 25: Epilepsy and Dental Care

Epilepsy Awareness Month Day 25: Epilepsy and Dental Care

Anti-epilepsy medications can ruin a person’s teeth

Robert is very comfortable at the dentist
Robert has always been good about brushing his teeth but when he lived independently he didn’t regularly see a dentist.  As we found out this year, the dentist he did see actually did not...

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Robert's Sister
Epilepsy Awareness Month Day 24: Mood and Medications

Epilepsy Awareness Month Day 24: Mood and Medications

Robert is generally very polite, sweet and overall in an excellent mood.  It might be physically difficult to care for him but it is not emotionally difficult when he is cooperative, joking around and full of laughter. 

Robert playing ball with the dogs
When Robert (or any caree for...

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Robert's Sister
Epilepsy Awareness Month Day 23: Spreadsheets, Spreadsheets and More Spreadsheets

Epilepsy Awareness Month Day 23: Spreadsheets, Spreadsheets and More Spreadsheets

Being organized gives me a sense of relief and peace.  I can breathe a little easier when I know the briefs are in the same cabinet as they were last week and the extra toothpaste is on a shelf that I can direct Richard to when Robert is asking for more.

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