epilepsy

Robert's Sister
Caregiving Blog Party 2015

Caregiving Blog Party 2015

It is that time of year! Grab a cup of hot cocoa, a bag of tiny marshmallows (oh yes, I said a bag) and a few candy canes.  We are going to have fun this week!


Every year, Denise Brown hosts a Blog Party through her site for...

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Robert's Sister
Epilepsy Awareness Month: CTE and Epilepsy – Making the Connection

Epilepsy Awareness Month:  CTE and Epilepsy – Making the Connection

The connection between blows to the head (even those not resulting in a concussion) and Chronic Traumatic Encephalopathy (CTE) is clear thanks to the persistence, innovation and research of Dr. Bennet Omalu, a forensic pathologist and the doctor who wrote the book, “Play Hard, Die Young: Football Dementia, Depression and Death.”

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Robert's Sister
Epilepsy Awareness Month: 30 Facts about Epilepsy

Epilepsy Awareness Month:  30 Facts about Epilepsy

A reader of the Robert’s Sister Facebook pagerecently asked if she could share the epilepsy series I did a few years ago (30 Facts in 30 Days). (Of course I said yes!)

Bonus fact: First Aid for Seizures
(courtesy of the Epilepsy Foundation
of Greater Los Angeles)
A friend of...

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Robert's Sister
Epilepsy Awareness Month 2015: A Sea of Advocacy

Epilepsy Awareness Month 2015: A Sea of Advocacy

Our recent trip to the Epilepsy Awareness Day at Disneylandbrought us face to face with many wonderful and inspiring advocates – all full of life, laughter, education and a passion for managing and curing epilepsy!

Epilepsy Awareness Day at Disneyland not only is a way for families affected by...

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Robert's Sister
Epilepsy Awareness Month 2015: Caregiving. Family. Advocacy.

Epilepsy Awareness Month 2015: Caregiving. Family. Advocacy.

It is hard to believe it has been seven years since I first started caring for Robert.  In the fall of 2008, Robert had recurring infections and allowed a stranger to live in his house (a homeless woman he and his companion, Judy, met while picking up their prescriptions).  By Thanksgiving, this woman had...

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Robert's Sister
Preparation for Respite Weekend

Preparation for Respite Weekend

Respite Weekend was a definite success but getting here was no easy feat!

Even though we are officially “entitled” to twelve respite nights per year from Robert’s social services agency, we have not even come close to taking advantage of that.  

Dropping Robert at respite. 
It isn’t even...

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Robert's Sister
Respite Weekend: Declared a Success!

Respite Weekend: Declared a Success!

Getting to respite was not easy but let’s not focus on that.  (You can read about that on Tuesday.)

Today we are jumping for joy because respite weekend happened and it was a resounding success!

Sure, my plans for respite looked like this in my head:


See a couple of movies;

Go out...

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Robert's Sister
Oh God! We’re Talking About Sex and Caregiving

Oh God! We’re Talking About Sex and Caregiving

I am seriously uncomfortable talking about sex. To me, this is something that is private and should never be discussed. Ever. Not in a million years. Well, okay, that is an exaggeration.  Of course I talked about sex with the kids – heck, even around the dinner table. But certainly not in every day...

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Robert's Sister
Another Medication Change

Another Medication Change

For someone who proclaims to loathe medication changes, I allow a surprising number of them.

One of two containers we use for meds for the week
A year ago, Robert’s seizure activity changed. He went from having one or two a day to having one or two a day...

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Robert's Sister
Happy 50th Birthday, Robert!

Happy 50th Birthday, Robert!

Robert turns 50 years old today!

After a busy year and an insanely busy summer, I think it is only appropriate to get back to this blogging business with a celebration or two – it is also my and Richard’s 18th anniversary!

Eighteen years ago, I never imagined Robert’s birthday and our anniversary...

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