epilepsy

Robert's Sister
Epilepsy Awareness Month Day 20: Memories

Epilepsy Awareness Month Day 20: Memories

One impact epilepsy has had on Robert is on his memory.  I don’t quite understand why he has memory problems (which have definitely increased as time goes by) but I am positive it has to do with his overall decline from epilepsy, his brain surgeries, medications, head trauma and uncontrolled seizures. 

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Robert's Sister
Epilepsy Awareness Month Day 19: The Careful Dance of Sickness

Epilepsy Awareness Month Day 19:  The Careful Dance of Sickness

Despite my best efforts to keep Robert from getting my cold (which I got from Richard, by the way), Robert got sick.  He was congested for a few days then it hit in full force and last night Robert was wheezing and shivering which usually means a temperature is about to break out and...

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Robert's Sister
Epilepsy Awareness Month 2014 Day 18: Caregiving as a Team

Epilepsy Awareness Month 2014 Day 18:  Caregiving as a Team

Richard and I have been together for 18 years and raised three kids together (two his, one mine, although we just call this “family”). Even though we have different parenting styles (mine is better, of course, if only because I am the one writing this), we managed to get the kids to adulthood with...

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Robert's Sister
Epilepsy Awareness Month 2014 Day 17: Photo Surprises

Epilepsy Awareness Month 2014 Day 17:  Photo Surprises

It is a good thing Robert is a ham! I certainly couldn’t get him to participate in so many videos unless he loved the camera. 

Robert is in the middle of this group of pictures -
standing tall
Robert also loves to take pictures. For years, Robert showed up to...

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Robert's Sister
Epilepsy Awareness Month Day 16: Epilepsy and Religion

Epilepsy Awareness Month Day 16:  Epilepsy and Religion

I have always been perplexed about Robert’s deep religious beliefs. 

Trish took Robert to church a while back
In fact, I have found myself annoyed when I am waiting for him to finish saying grace and I am starving to death.  I think it’s a little over the top...

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Robert's Sister
Epilepsy Awareness Month Day 15: Friendships, Bonds and Blessings

Epilepsy Awareness Month Day 15:  Friendships, Bonds and Blessings

A devastating side-effect of epilepsy is social isolation.

The Epilepsy Society of the UK discusses the link between epilepsy and mood which, of course, can affect personal relationships. 

Robert and Carol: a bond and blessing
Whether this is because of the medications or the fear of having a seizure...

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Robert's Sister
Epilepsy Awareness Month Day 14: Ack! The Caregiver is Sick

Epilepsy Awareness Month Day 14:  Ack! The Caregiver is Sick

The impact of epilepsy on Robert is that he has declined to the point of needing assistance with his daily living tasks.  He is incontinent but isn’t aware (or concerned) if his pants get wet.  He’s told me before, “they’ll be dry by morning.” 

Um, he needs a little . . . guidance when it...

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Robert's Sister
Epilepsy Awareness Month Day 13: Enjoying the Simple Things

Epilepsy Awareness Month Day 13:  Enjoying the Simple Things

I don’t know if Robert finds pleasure in simple things because of the cognitive impairment that has increased over the years or if he just figured out the key to happiness before the rest of us.

Deeeelicious! 
Robert has had many challenges to overcome in his life due to...

Robert's Sister
Epilepsy Awareness Month Day 12: Epilepsy and Working

Epilepsy Awareness Month Day 12:  Epilepsy and Working

Yesterday Robert talked about not being able to drive because of his uncontrolled epilepsy (well, except for that one time our dad let him drive but that’ll be our little secret).

Once Robert finished his bedtime routine and got settled into bed (and agreed to set aside the word...

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Robert's Sister
Epilepsy Awareness Month Day 11: Driving and Epilepsy

Epilepsy Awareness Month Day 11:  Driving and Epilepsy

Many people with epilepsy achieve good seizure control with medicine, surgery, diet, a medical device (such as the VNS) or some combination of any of these.  However, a third of people with epilepsy never get their seizures under control. 

'69 Chevy Chevelle: Other Brother and I learned...

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