epilepsy

Newsflash:  Sometimes caregiving is fulfilling and sometimes it’s a pain in the you-know-what.For someone who loves order and routine, I have learned am learning that these wide swings can be over the course of a month, week or day.   ...

I love the word “discombobulated.”Only a moment of peace -do not be deceivedJust hearing the word conveys its meaning: confusion.  The word bounces around your mouth as if in a state of confusion itself.  Whenever I say it out loud it tak...

Richard and his mom coined the term, “TMT.”Since Richard is his mom’s primary caregiver, they spend a great deal of time together going to doctor appointments which are usually an hour away or during her hospitalizations for surgery or heart-rela...

I am very grateful for the care Robert received in the hospital last week but, unfortunately, there were varying degrees of attentiveness and competency.  Much of his treatment and care was wonderful and appreciated but there were a few instances ...

A week ago Friday, Robert woke up with a temperature of 102, difficulty breathing and unable to sit up without assistance.  EMTs were called, Robert was taken to the emergency room and diagnosed with septic shock and pneumonia.Robert is happy to b...

“I was wondering if this would be too much for you.”A friend, Denise Brown, recently asked me this but she wasn’t referring to caring for Robert.  She knows Richard and I can care for Robert and that bringing him into our home was the right ...

My biggest concern about moving Robert in with us was the responsibility of his medications.  Will I be able to keep them in stock? Will I remember to give them to him at the right time? Will I be able to organize his refills and keep the Day Prog...

No more rationing how many nights Robert can sleep over;No more arranging doctor appointments not only around my schedule, work and when Robert is sleeping over but New Home schedule; Robert's first "official" night home -with a bowl of Rocky Road...

Medication dispense times per day: 7Four days of Robert's pillsTotal number of pills to give per day: 25Medications to keep filled on time: 9The consequences of screwing this up: severe (increased and/or prolonged seizures, physically hurt from increas...

My checklists have checklists (and that’s on a normal day).Preparing for Robert moving in?  Let’s just say my checklists are having a tough time keeping up.Preparations are well under way and tasks are being crossed off the list at pretty good...