One impact epilepsy has had on Robert is on his memory. I don’t quite understand why he has memory problems (which have definitely increased as time goes by) but I am positive it has to do with his overall decline from epilepsy, his brain surgeries, medications, head trauma and uncontrolled seizures.
Richard and I have been together for 18 years and raised three kids together (two his, one mine, although we just call this “family”). Even though we have different parenting styles (mine is better, of course, if only because I am the one writing this), we managed to get the kids to adulthood with...
It is a good thing Robert is a ham! I certainly couldn’t get him to participate in so many videos unless he loved the camera.
I have always been perplexed about Robert’s deep religious beliefs.
A devastating side-effect of epilepsy is social isolation.
The Epilepsy Society of the UK discusses the link between epilepsy and mood which, of course, can affect personal relationships.
The impact of epilepsy on Robert is that he has declined to the point of needing assistance with his daily living tasks. He is incontinent but isn’t aware (or concerned) if his pants get wet. He’s told me before, “they’ll be dry by morning.”
I don’t know if Robert finds pleasure in simple things because of the cognitive impairment that has increased over the years or if he just figured out the key to happiness before the rest of us.
Yesterday Robert talked about not being able to drive because of his uncontrolled epilepsy (well, except for that one time our dad let him drive but that’ll be our little secret).
Many people with epilepsy achieve good seizure control with medicine, surgery, diet, a medical device (such as the VNS) or some combination of any of these. However, a third of people with epilepsy never get their seizures under control.