epilepsy

Robert's Sister
Self-Care Deprived

Self-Care Deprived

I realized I was self-care deprived the day after Robert was released from the hospital and temporarily placed in a Skilled Nursing Facility. It was a Saturday and my to-do list looked like this:



Hmmm, I’m seeing a theme in this list.

I didn’t get everything done on that list the...

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Robert's Sister
Welcome Back, Robert

Welcome Back, Robert

Sometimes there aren't any good decisions in caregiving. 

Mail call! A card and bookmark from Carol
Decision number one: Do we send Robert to the hospital?

Robert couldn’t walk.  I mean he couldn’t even turn his legs to transfer from getting out of bed to the wheelchair. I could see...

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Robert's Sister
Comfort in a Diagnosis

Comfort in a Diagnosis

Robert has declined so quickly this year and had so many different things going on, my head has been spinning.  I just want to find out what’s wrong!

 

Looks like Robert's appetite is back!

Questions have swirled this year: Why is he getting pneumonia so frequently? Do we use...

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Robert's Sister
Passing Time in the ER

Passing Time in the ER

Robert came into the hospital last Tuesday.

I am pretty sure today is Monday and, yep, we’re still here.
Rocky Road makes the wait much easier

Anyone who has spent any time at all in the hospital or visiting anyone in the hospital or knows anything about hospitals knows there...

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Robert's Sister
This Doesn’t Sound Good

This Doesn’t Sound Good



Robert had an appointment with the neurologist Tuesday afternoon. 

It is a day later and I am still processing what happened.  Still kind of spinning, actually. 
We have had a rough few months trying out a new med and fending off an overwhelming amount of congestion(which I see as an oncoming pneumonia train). 

We...

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Robert's Sister
Do you know how to recognize if someone is having seizure? Do you know what to do?

Do you know how to recognize if someone is having seizure? Do you know what to do?

This bilingual poster, courtesy of the Epilepsy Foundation of Greater Los Angeles, is well worth sharing.  It's important to know it is okay to talk about epilepsy, it is nothing to fear and neither are seizures. It is okay to help and these posters let us know exactly how we can help.

I would like...

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Robert's Sister
Ending the New Medication Experiment

Ending the New Medication Experiment

At least Robert is happy when he's eating!

We have been trying the “new” seizure medication, in varying dosages, since February.  Robert’s neurologist thought we should try Trileptal so, in February, started him on 300 mg in the morning and evening.

After a week, we had to give it...

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The State Hornet
Communications student dies from epileptic seizure

May 16, 2014

Sacramento State communication studies student died following an epileptic seizure on May 6.

Robert's Sister
What More Can I Do?

What More Can I Do?

Robert has battled bronchitis three times since January. He was hospitalized three times last year for pneumonia. He has such constant congestion that even the Costco packages of tissues aren’t enough to last very long. When the congestion gets terrible and it turns into bronchitis or pneumonia, we resort to antibiotics.

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Robert's Sister
Finding the Sweet Spot

Finding the Sweet Spot

I’m not much of a baseball person. 

Okay, okay, I will wait while the gasps die down out here in SF Giants territory. 

Oh sure, when Giants fever was consuming my office I was a fan. I mean who couldn’t fall in love with Timmy Lincecum, Pablo Sandoval, Brian “The Beard”...

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