epilepsy

Robert's Sister
Epilepsy Awareness Month Day 25: Epilepsy and Dental Care

Epilepsy Awareness Month Day 25: Epilepsy and Dental Care

Anti-epilepsy medications can ruin a person’s teeth

Robert is very comfortable at the dentist
Robert has always been good about brushing his teeth but when he lived independently he didn’t regularly see a dentist.  As we found out this year, the dentist he did see actually did not...

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Robert's Sister
Epilepsy Awareness Month Day 24: Mood and Medications

Epilepsy Awareness Month Day 24: Mood and Medications

Robert is generally very polite, sweet and overall in an excellent mood.  It might be physically difficult to care for him but it is not emotionally difficult when he is cooperative, joking around and full of laughter. 

Robert playing ball with the dogs
When Robert (or any caree for...

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Robert's Sister
Epilepsy Awareness Month Day 23: Spreadsheets, Spreadsheets and More Spreadsheets

Epilepsy Awareness Month Day 23: Spreadsheets, Spreadsheets and More Spreadsheets

Being organized gives me a sense of relief and peace.  I can breathe a little easier when I know the briefs are in the same cabinet as they were last week and the extra toothpaste is on a shelf that I can direct Richard to when Robert is asking for more.

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Robert's Sister
Epilepsy Awareness Month Day 22: Tips for a Successful Respite

Epilepsy Awareness Month Day 22: Tips for a Successful Respite

Confession: I am much better about talking about tips for a successful respite than I am about actually taking respite for myself!

A pedicure and a new pair of shoes -
my favorite form of self-care
It has been a while since Richard and I had a weekend for just...

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Robert's Sister
Epilepsy Awareness Month Day 21: Managing Incontinence

Epilepsy Awareness Month Day 21: Managing Incontinence

Before we get to today’s topic, I just want to say: OH MY GOODNESS!  We are two-thirds of the way through Epilepsy Awareness Month! My purpose this month has been to post a video each day about the impact epilepsy has had on Robert.  My intent was also to keep the videos to two...

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Robert's Sister
Epilepsy Awareness Month Day 20: Memories

Epilepsy Awareness Month Day 20: Memories

One impact epilepsy has had on Robert is on his memory.  I don’t quite understand why he has memory problems (which have definitely increased as time goes by) but I am positive it has to do with his overall decline from epilepsy, his brain surgeries, medications, head trauma and uncontrolled seizures. 

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Robert's Sister
Epilepsy Awareness Month Day 19: The Careful Dance of Sickness

Epilepsy Awareness Month Day 19:  The Careful Dance of Sickness

Despite my best efforts to keep Robert from getting my cold (which I got from Richard, by the way), Robert got sick.  He was congested for a few days then it hit in full force and last night Robert was wheezing and shivering which usually means a temperature is about to break out and...

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Robert's Sister
Epilepsy Awareness Month 2014 Day 18: Caregiving as a Team

Epilepsy Awareness Month 2014 Day 18:  Caregiving as a Team

Richard and I have been together for 18 years and raised three kids together (two his, one mine, although we just call this “family”). Even though we have different parenting styles (mine is better, of course, if only because I am the one writing this), we managed to get the kids to adulthood with...

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Robert's Sister
Epilepsy Awareness Month 2014 Day 17: Photo Surprises

Epilepsy Awareness Month 2014 Day 17:  Photo Surprises

It is a good thing Robert is a ham! I certainly couldn’t get him to participate in so many videos unless he loved the camera. 

Robert is in the middle of this group of pictures -
standing tall
Robert also loves to take pictures. For years, Robert showed up to...

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Robert's Sister
Epilepsy Awareness Month Day 16: Epilepsy and Religion

Epilepsy Awareness Month Day 16:  Epilepsy and Religion

I have always been perplexed about Robert’s deep religious beliefs. 

Trish took Robert to church a while back
In fact, I have found myself annoyed when I am waiting for him to finish saying grace and I am starving to death.  I think it’s a little over the top...

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