Every now and then Robert’s neurologist wants to try a new medication. Robert is on a litany of drugs right now yet his seizures remain uncontrolled. Over the past few months, Robert’s seizures have been coming in clusters and have been more frequent.
|Robert - happy and doing...|
I don’t like to admit seizures scare me but sometimes they do.
You would think I would be used to Robert having seizures. After all, he’s my youngest brother and he’s had them practically his entire life.
Robert’s seizures have evolved over time from Absence Seizures...
Richard and I recently participated in a project created by Denise Brown, founder of the non-profit CareGiving.com, Chris MacLellan, founder of ThePurpleJacket.com, and Rajiv Mehta, founder of Unfrazzle.
One weekend a few months ago, Robert asked me to find his pocket phone book. I knew we didn’t have this but I looked in his closet anyway. I told Robert there was no pocket phone book to be found.
I’ve been having a pity party (don’t take it personally if I didn’t invite you). Thank goodness it’s almost over, though – I am running out of refreshments.
So what’s been my problem?
I am exhausted! I wrote a to-do list at the beginning of the weekend and knew it was a long shot to be able to get half of it done.
My to-do list included “to-dos” for Robert and my husband, too! Boy, are they happy with me!
Epilepsy Awareness Month: Advocating for Awareness and Answers – Interview with The Epilepsy Warriors Foundation
Because I am on vacation (part of which is in Florida), I thought it fitting to share my interview with Susan Noble of The Epilepsy Warriors Foundationwhich is based in Florida.