epilepsy

Robert's Sister
Connecting all the Pieces

Connecting all the Pieces

I was recently asked by a friend how Robert’s pulmonary issues are connected to his seizures.

I thought this was a terrific question and one I have been trying to understand ever since his pneumonias started showing up a couple of years ago.

But first, I had to sing “The knee...

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Robert's Sister
Robert’s Birthday Fun

Robert’s Birthday Fun

Robert turned 49 years old on Saturday, September 6.  Woohoo! Happy Birthday, Robert!

Richard took a birthday cake to program when he dropped off Robert on Friday morning. I had forgotten to tell program that we were doing this but they know me by now and are not going to turn away cake! 

I wondered all...

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Robert's Sister
Self-Care Deprived

Self-Care Deprived

I realized I was self-care deprived the day after Robert was released from the hospital and temporarily placed in a Skilled Nursing Facility. It was a Saturday and my to-do list looked like this:



Hmmm, I’m seeing a theme in this list.

I didn’t get everything done on that list the...

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Robert's Sister
Welcome Back, Robert

Welcome Back, Robert

Sometimes there aren't any good decisions in caregiving. 

Mail call! A card and bookmark from Carol
Decision number one: Do we send Robert to the hospital?

Robert couldn’t walk.  I mean he couldn’t even turn his legs to transfer from getting out of bed to the wheelchair. I could see...

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Robert's Sister
Comfort in a Diagnosis

Comfort in a Diagnosis

Robert has declined so quickly this year and had so many different things going on, my head has been spinning.  I just want to find out what’s wrong!

 

Looks like Robert's appetite is back!

Questions have swirled this year: Why is he getting pneumonia so frequently? Do we use...

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Robert's Sister
Passing Time in the ER

Passing Time in the ER

Robert came into the hospital last Tuesday.

I am pretty sure today is Monday and, yep, we’re still here.
Rocky Road makes the wait much easier

Anyone who has spent any time at all in the hospital or visiting anyone in the hospital or knows anything about hospitals knows there...

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Robert's Sister
This Doesn’t Sound Good

This Doesn’t Sound Good



Robert had an appointment with the neurologist Tuesday afternoon. 

It is a day later and I am still processing what happened.  Still kind of spinning, actually. 
We have had a rough few months trying out a new med and fending off an overwhelming amount of congestion(which I see as an oncoming pneumonia train). 

We...

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Robert's Sister
Do you know how to recognize if someone is having seizure? Do you know what to do?

Do you know how to recognize if someone is having seizure? Do you know what to do?

This bilingual poster, courtesy of the Epilepsy Foundation of Greater Los Angeles, is well worth sharing.  It's important to know it is okay to talk about epilepsy, it is nothing to fear and neither are seizures. It is okay to help and these posters let us know exactly how we can help.

I would like...

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Robert's Sister
Ending the New Medication Experiment

Ending the New Medication Experiment

At least Robert is happy when he's eating!

We have been trying the “new” seizure medication, in varying dosages, since February.  Robert’s neurologist thought we should try Trileptal so, in February, started him on 300 mg in the morning and evening.

After a week, we had to give it...

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The State Hornet
Communications student dies from epileptic seizure

May 16, 2014

Sacramento State communication studies student died following an epileptic seizure on May 6.

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