Trish Hughes Kreis

Trish Hughes Kreis Robert is my youngest brother and I handle his care. I also have a supportive family (husband and three kids) and a "day job" as a legal administrator for a wonderful law firm (no, that is not an oxymoron). I do some freelance writing as well. Aside from advocating for the best care possible for Robert, I enjoy playing cards with him and listening to his silly jokes. (Robert’s greatest joy seems to be beating me at cards which he does most of the time).

Web Site: http://www.robertssister.com/


Connecting all the Pieces

Sep 21, 2014
Connecting all the Pieces

I was recently asked by a friend how Robert’s pulmonary issues are connected to his seizures.

I thought this was a terrific question and one I have been trying to understand ever since his pneumonias started showing up a couple of years ago.

But first, I had to sing “The knee...

Robert’s Birthday Fun

Sep 7, 2014
Robert’s Birthday Fun

Robert turned 49 years old on Saturday, September 6.  Woohoo! Happy Birthday, Robert!

Richard took a birthday cake to program when he dropped off Robert on Friday morning. I had forgotten to tell program that we were doing this but they know me by now and are not going to turn away cake! 

I wondered all...

Robert is Back Home!

Aug 30, 2014
Robert is Back Home!

After nearly two weeks in the hospital and 48 days in a Skilled Nursing facility, Robert is home!

Packing up to leave the SNF
For weeks I wondered if he would be able to come home or even if I could continue to care for him at home.  By...

#mycare Contest Winners!

Aug 20, 2014
#mycare Contest Winners!

What a fun week! 

After my realization that I was self-care deprived, Denise Brown of CareGiving.comand I launched this self-care challenge:

Take care of yourself, take a picture of it, post it on social media using #mycare for a chance to win a prize! The prizes of an “I Care” t-shirt and a...

Self-Care Deprived

Aug 12, 2014
Self-Care Deprived

I realized I was self-care deprived the day after Robert was released from the hospital and temporarily placed in a Skilled Nursing Facility. It was a Saturday and my to-do list looked like this:



Hmmm, I’m seeing a theme in this list.

I didn’t get everything done on that list the...

The Caregiving Creep

Aug 4, 2014
The Caregiving Creep

Six years ago my girls were in their second year of college and had, for the most part, moved out of the house. At least one of them came home on the weekends (or for a day here or there) and Richard and I still had our son living at home but he split...

Welcome Back, Robert

Jul 19, 2014
Welcome Back, Robert

Sometimes there aren't any good decisions in caregiving. 

Mail call! A card and bookmark from Carol
Decision number one: Do we send Robert to the hospital?

Robert couldn’t walk.  I mean he couldn’t even turn his legs to transfer from getting out of bed to the wheelchair. I could see...

Comfort in a Diagnosis

Jul 13, 2014
Comfort in a Diagnosis

Robert has declined so quickly this year and had so many different things going on, my head has been spinning.  I just want to find out what’s wrong!

 

Looks like Robert's appetite is back!

Questions have swirled this year: Why is he getting pneumonia so frequently? Do we use...

Passing Time in the ER

Jul 7, 2014
Passing Time in the ER

Robert came into the hospital last Tuesday.

I am pretty sure today is Monday and, yep, we’re still here.
Rocky Road makes the wait much easier

Anyone who has spent any time at all in the hospital or visiting anyone in the hospital or knows anything about hospitals knows there...

This Doesn’t Sound Good

Jun 25, 2014
This Doesn’t Sound Good



Robert had an appointment with the neurologist Tuesday afternoon. 

It is a day later and I am still processing what happened.  Still kind of spinning, actually. 
We have had a rough few months trying out a new med and fending off an overwhelming amount of congestion(which I see as an oncoming pneumonia train). 

We...

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