Trish Hughes Kreis

Trish Hughes Kreis Robert is my youngest brother and I handle his care. I also have a supportive family (husband and three kids) and a "day job" as a legal administrator for a wonderful law firm (no, that is not an oxymoron). I do some freelance writing as well. Aside from advocating for the best care possible for Robert, I enjoy playing cards with him and listening to his silly jokes. (Robert’s greatest joy seems to be beating me at cards which he does most of the time).

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Epilepsy Awareness Month: 30 Facts about Epilepsy

Nov 15, 2015
Epilepsy Awareness Month:  30 Facts about Epilepsy

A reader of the Robert’s Sister Facebook pagerecently asked if she could share the epilepsy series I did a few years ago (30 Facts in 30 Days). (Of course I said yes!)

Bonus fact: First Aid for Seizures
(courtesy of the Epilepsy Foundation
of Greater Los Angeles)
A friend of...

Epilepsy Awareness Month 2015: A Sea of Advocacy

Nov 11, 2015
Epilepsy Awareness Month 2015: A Sea of Advocacy

Our recent trip to the Epilepsy Awareness Day at Disneylandbrought us face to face with many wonderful and inspiring advocates – all full of life, laughter, education and a passion for managing and curing epilepsy!

Epilepsy Awareness Day at Disneyland not only is a way for families affected by...

Epilepsy Awareness Month 2015: Caregiving. Family. Advocacy.

Nov 1, 2015
Epilepsy Awareness Month 2015: Caregiving. Family. Advocacy.

It is hard to believe it has been seven years since I first started caring for Robert.  In the fall of 2008, Robert had recurring infections and allowed a stranger to live in his house (a homeless woman he and his companion, Judy, met while picking up their prescriptions).  By Thanksgiving, this woman had...

Preparation for Respite Weekend

Oct 27, 2015
Preparation for Respite Weekend

Respite Weekend was a definite success but getting here was no easy feat!

Even though we are officially “entitled” to twelve respite nights per year from Robert’s social services agency, we have not even come close to taking advantage of that.  

Dropping Robert at respite. 
It isn’t even...

Respite Weekend: Declared a Success!

Oct 25, 2015
Respite Weekend: Declared a Success!

Getting to respite was not easy but let’s not focus on that.  (You can read about that on Tuesday.)

Today we are jumping for joy because respite weekend happened and it was a resounding success!

Sure, my plans for respite looked like this in my head:

See a couple of movies;

Go out...

Oh God! We’re Talking About Sex and Caregiving

Oct 11, 2015
Oh God! We’re Talking About Sex and Caregiving

I am seriously uncomfortable talking about sex. To me, this is something that is private and should never be discussed. Ever. Not in a million years. Well, okay, that is an exaggeration.  Of course I talked about sex with the kids – heck, even around the dinner table. But certainly not in every day...

Death, Grief and Dreams

Sep 27, 2015
Death, Grief and Dreams

September 21 was World Alzheimer’s Day.  Alzheimer’s was not something that affected my parents or grandparents or other relatives but it has affected dear friends, their relatives and my dear, delightful, vivacious first Mother-in-Law. 

In honor of this beautiful woman, who was affectionately called “Bib” growing up (and for some reason, I always called her...

Another Medication Change

Sep 17, 2015
Another Medication Change

For someone who proclaims to loathe medication changes, I allow a surprising number of them.

One of two containers we use for meds for the week
A year ago, Robert’s seizure activity changed. He went from having one or two a day to having one or two a day...

Caregiving Study: Atlas of Caregiving

Sep 13, 2015
Caregiving Study: Atlas of Caregiving

Richard, Robert and I recently participated in a study about our caregiving day.  If this sounds familiar it is because Richard and I did do something similar last year.  We kept a log of our daily caregiving tasks which was quite an eye opener.  I had no idea how many different caregiving tasks were...

Happy 50th Birthday, Robert!

Sep 6, 2015
Happy 50th Birthday, Robert!

Robert turns 50 years old today!

After a busy year and an insanely busy summer, I think it is only appropriate to get back to this blogging business with a celebration or two – it is also my and Richard’s 18th anniversary!

Eighteen years ago, I never imagined Robert’s birthday and our anniversary...

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