Trish Hughes Kreis

Trish Hughes Kreis Robert is my youngest brother and I handle his care. I also have a supportive family (husband and three kids) and a "day job" as a legal administrator for a wonderful law firm (no, that is not an oxymoron). I do some freelance writing as well. Aside from advocating for the best care possible for Robert, I enjoy playing cards with him and listening to his silly jokes. (Robert’s greatest joy seems to be beating me at cards which he does most of the time).

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Piecing Together Respite

Mar 7, 2016
Piecing Together Respite

I followed my own advice: be flexible with respite. I explained months ago to Robert’s case worker that we would love to take advantage of respite. Robert is a client of the local regional center and one of the benefits is 14 days per year of respite care. Richard and I don’t need 14...

Create! In Spite of the Doubt

Feb 28, 2016
Create! In Spite of the Doubt

One thing I remember about my mom is how she loved to write poetry. She would write poems or lengthy thoughts from her heart in birthday cards, in her journal, and I suspect in her anniversary cards to her husband(s).

Two of Mom's photography pieces
We would joke about...

Sorry, Not Sorry

Feb 17, 2016
Sorry, Not Sorry

I have a friend who is a caregiver to her husband who has Early Onset Mild Cognitive Impairment. G-J is a dynamo! She cares for her husband which involves numerous doctor’s appointments, medications, classes to help brain function as well as many, many other tasks. She teaches at a local senior care home, is...

Love Is All Around Us

Feb 14, 2016
Love Is All Around Us

It is Valentine’s Day so why not talk about love? There are many examples of love that I have been privileged to witness and not just the lovey-dovey kind found in commercials for Valentine’s Day chocolates or Viagra.

Love is going through life knowing you have someone on your side....

Help and Hope

Jan 13, 2016
Help and Hope

I just love leaving the neurologist’s office with such hope.  Robert’s seizures have remained largely uncontrolled his entire life; his seizures changing over the years but never going away after numerous medications changes, surgeries and the use of various medical devices.
Between seizures - declaring himself excellent

Robert now...

365 Caregiving Tips: Practical Tips from Everyday Caregivers

Dec 21, 2015
365 Caregiving Tips: Practical Tips from Everyday Caregivers

Life is funny sometimes. 

When I started caring for Robert seven years ago – and believe me, it does not seem seven years has gone by since then – I had no idea what the future had in store for me or him.  I did not know what I was doing and certainly did not...

Holidays, Decorating and Caregiving

Dec 9, 2015
Holidays, Decorating and Caregiving

Readers know how much I love to decorate at Christmas time! This passion for lights, snowmen and holiday cheer could be called over the top or slightly very excessive (Exhibits A, Band C)but I like to call it “normal,” “spreading Christmas joy” and “oh so much fun!”

Caregiving Blog Party 2015

Dec 7, 2015
Caregiving Blog Party 2015

It is that time of year! Grab a cup of hot cocoa, a bag of tiny marshmallows (oh yes, I said a bag) and a few candy canes.  We are going to have fun this week!

Every year, Denise Brown hosts a Blog Party through her site for...

Epilepsy Awareness Month: CTE and Epilepsy – Making the Connection

Nov 21, 2015
Epilepsy Awareness Month:  CTE and Epilepsy – Making the Connection

The connection between blows to the head (even those not resulting in a concussion) and Chronic Traumatic Encephalopathy (CTE) is clear thanks to the persistence, innovation and research of Dr. Bennet Omalu, a forensic pathologist and the doctor who wrote the book, “Play Hard, Die Young: Football Dementia, Depression and Death.”

Epilepsy Awareness Month: 30 Facts about Epilepsy

Nov 15, 2015
Epilepsy Awareness Month:  30 Facts about Epilepsy

A reader of the Robert’s Sister Facebook pagerecently asked if she could share the epilepsy series I did a few years ago (30 Facts in 30 Days). (Of course I said yes!)

Bonus fact: First Aid for Seizures
(courtesy of the Epilepsy Foundation
of Greater Los Angeles)
A friend of...

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