Trish Hughes Kreis

Trish Hughes Kreis Robert is my youngest brother and I handle his care. I also have a supportive family (husband and three kids) and a "day job" as a legal administrator for a wonderful law firm (no, that is not an oxymoron). I do some freelance writing as well. Aside from advocating for the best care possible for Robert, I enjoy playing cards with him and listening to his silly jokes. (Robert’s greatest joy seems to be beating me at cards which he does most of the time).

Web Site: http://www.robertssister.com/


Epilepsy Awareness Month Day 23: Spreadsheets, Spreadsheets and More Spreadsheets

Nov 23, 2014
Epilepsy Awareness Month Day 23: Spreadsheets, Spreadsheets and More Spreadsheets

Being organized gives me a sense of relief and peace.  I can breathe a little easier when I know the briefs are in the same cabinet as they were last week and the extra toothpaste is on a shelf that I can direct Richard to when Robert is asking for more.

Epilepsy Awareness Month Day 22: Tips for a Successful Respite

Nov 22, 2014
Epilepsy Awareness Month Day 22: Tips for a Successful Respite

Confession: I am much better about talking about tips for a successful respite than I am about actually taking respite for myself!

A pedicure and a new pair of shoes -
my favorite form of self-care
It has been a while since Richard and I had a weekend for just...

Epilepsy Awareness Month Day 21: Managing Incontinence

Nov 21, 2014
Epilepsy Awareness Month Day 21: Managing Incontinence

Before we get to today’s topic, I just want to say: OH MY GOODNESS!  We are two-thirds of the way through Epilepsy Awareness Month! My purpose this month has been to post a video each day about the impact epilepsy has had on Robert.  My intent was also to keep the videos to two...

Epilepsy Awareness Month Day 20: Memories

Nov 20, 2014
Epilepsy Awareness Month Day 20: Memories

One impact epilepsy has had on Robert is on his memory.  I don’t quite understand why he has memory problems (which have definitely increased as time goes by) but I am positive it has to do with his overall decline from epilepsy, his brain surgeries, medications, head trauma and uncontrolled seizures. 

Epilepsy Awareness Month Day 19: The Careful Dance of Sickness

Nov 19, 2014
Epilepsy Awareness Month Day 19:  The Careful Dance of Sickness

Despite my best efforts to keep Robert from getting my cold (which I got from Richard, by the way), Robert got sick.  He was congested for a few days then it hit in full force and last night Robert was wheezing and shivering which usually means a temperature is about to break out and...

Epilepsy Awareness Month 2014 Day 18: Caregiving as a Team

Nov 18, 2014
Epilepsy Awareness Month 2014 Day 18:  Caregiving as a Team

Richard and I have been together for 18 years and raised three kids together (two his, one mine, although we just call this “family”). Even though we have different parenting styles (mine is better, of course, if only because I am the one writing this), we managed to get the kids to adulthood with...

Fall Prevention: Handi-Ramp

Nov 18, 2014
Fall Prevention: Handi-Ramp

A representative from Handi-Rampcontacted me to see if we would try out their handi-treadsfor stairs and give them a review.  I don’t usually do this but since they are a product designed to prevent falls, I thought it important to share as much information about them as...

Epilepsy Awareness Month 2014 Day 17: Photo Surprises

Nov 17, 2014
Epilepsy Awareness Month 2014 Day 17:  Photo Surprises

It is a good thing Robert is a ham! I certainly couldn’t get him to participate in so many videos unless he loved the camera. 

Robert is in the middle of this group of pictures -
standing tall
Robert also loves to take pictures. For years, Robert showed up to...

Epilepsy Awareness Month Day 16: Epilepsy and Religion

Nov 16, 2014
Epilepsy Awareness Month Day 16:  Epilepsy and Religion

I have always been perplexed about Robert’s deep religious beliefs. 

Trish took Robert to church a while back
In fact, I have found myself annoyed when I am waiting for him to finish saying grace and I am starving to death.  I think it’s a little over the top...

Epilepsy Awareness Month Day 15: Friendships, Bonds and Blessings

Nov 15, 2014
Epilepsy Awareness Month Day 15:  Friendships, Bonds and Blessings

A devastating side-effect of epilepsy is social isolation.

The Epilepsy Society of the UK discusses the link between epilepsy and mood which, of course, can affect personal relationships. 

Robert and Carol: a bond and blessing
Whether this is because of the medications or the fear of having a seizure...

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