Trish Hughes Kreis

Trish Hughes Kreis Robert is my youngest brother and I handle his care. I also have a supportive family (husband and three kids) and a "day job" as a legal administrator for a wonderful law firm (no, that is not an oxymoron). I do some freelance writing as well. Aside from advocating for the best care possible for Robert, I enjoy playing cards with him and listening to his silly jokes. (Robert’s greatest joy seems to be beating me at cards which he does most of the time).

Web Site: http://www.robertssister.com/


Making the Most of Stay at Home Respite

Aug 8, 2016
Making the Most of Stay at Home Respite

We created another Stay at Home Respite this weekend like we did in Marchwhen actual respite fell through. We decided it was time to do it again.

Dinner out with my sweetie

I am not going to lie: it would be really nice to have a “real” respite....

How a Childhood Gem Let Me Off the Hook

Jul 28, 2016
How a Childhood Gem Let Me Off the Hook

After going through a house move and an office move last year you would think the last thing I would want to do is unpack more boxes. For some crazy reason, though (probably because I am actually crazy), that’s exactly what I did last weekend.

Richard went to the Bay...

Family Traditions: Going to the State Fair!

Jul 20, 2016
Family Traditions: Going to the State Fair!

One of our family traditions is to walk around the California State Fair in 100 degree heat, maneuver between the crowds, eat the latest, crazy concoction (deep-fried Twinkies are not nearly as good as you might imagine), see the animals and, if we’re lucky, see a cow giving birth!

It...

Steady as She (He) Goes

Jul 3, 2016
Steady as She (He) Goes

Shh! Let’s keep these thoughts between us. I don’t want to jinx myself!

Robert - Ready for the 4th of July
party at Day Program
Winter is a rough time for Robert. There are numerous seizure clusters, he is constantly on the brink of pneumonia and, most days, can barely...

Happy Father’s Day

Jun 19, 2016
Happy Father’s Day

Chances are your dad is not perfect. You may even be a dad and I am going to look into my crystal ball and see that you are probably not perfect either.

That is because you are human and we humans are not known for getting everything right. Sometimes, we’re...

Atlas of Caregiving

May 25, 2016
Atlas of Caregiving

Last fall, I wrote about Richard, Robert and I participating in a caregiving study about our caregiving day.


Robert's View: Part of his grooming routine
It was conducted by Rajiv Mehta, Board member of Family Caregiver Alliance and Principal Investigator for Atlas of Caregivingand Dawn Nafus,...

The Waiting

Apr 5, 2016
The Waiting

Lily was last seen in Grass Valley, CAThe waiting is the worst.Waiting for test results. Waiting to see if a new medication works. Waiting to feel better. Waiting to find a lost dog (Lily).The waiting is the worst.Waiting to see if Richard's extra pain...

Three Years

Apr 3, 2016
Three Years

Three years ago Robert moved in with me and Richard.  Three years!! It really doesn’t seem possible it has been that long.

I took over Robert’s care at the end of 2008. Since that time he has lived in a Skilled Nursing Facility, an Assisted Living Residential Facility and a...

Piecing Together Respite

Mar 7, 2016
Piecing Together Respite

I followed my own advice: be flexible with respite. I explained months ago to Robert’s case worker that we would love to take advantage of respite. Robert is a client of the local regional center and one of the benefits is 14 days per year of respite care. Richard and I don’t need 14...

Create! In Spite of the Doubt

Feb 28, 2016
Create! In Spite of the Doubt

One thing I remember about my mom is how she loved to write poetry. She would write poems or lengthy thoughts from her heart in birthday cards, in her journal, and I suspect in her anniversary cards to her husband(s).


Two of Mom's photography pieces
We would joke about...

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