Trish Hughes Kreis

Trish Hughes Kreis Robert is my youngest brother and I handle his care. I also have a supportive family (husband and three kids) and a "day job" as a legal administrator for a wonderful law firm (no, that is not an oxymoron). I do some freelance writing as well. Aside from advocating for the best care possible for Robert, I enjoy playing cards with him and listening to his silly jokes. (Robert’s greatest joy seems to be beating me at cards which he does most of the time).

Web Site: http://www.robertssister.com/


#mycare Contest Winners!

Aug 20, 2014
#mycare Contest Winners!

What a fun week! 

After my realization that I was self-care deprived, Denise Brown of CareGiving.comand I launched this self-care challenge:

Take care of yourself, take a picture of it, post it on social media using #mycare for a chance to win a prize! The prizes of an “I Care” t-shirt and a...

Self-Care Deprived

Aug 12, 2014
Self-Care Deprived

I realized I was self-care deprived the day after Robert was released from the hospital and temporarily placed in a Skilled Nursing Facility. It was a Saturday and my to-do list looked like this:



Hmmm, I’m seeing a theme in this list.

I didn’t get everything done on that list the...

The Caregiving Creep

Aug 4, 2014
The Caregiving Creep

Six years ago my girls were in their second year of college and had, for the most part, moved out of the house. At least one of them came home on the weekends (or for a day here or there) and Richard and I still had our son living at home but he split...

Welcome Back, Robert

Jul 19, 2014
Welcome Back, Robert

Sometimes there aren't any good decisions in caregiving. 

Mail call! A card and bookmark from Carol
Decision number one: Do we send Robert to the hospital?

Robert couldn’t walk.  I mean he couldn’t even turn his legs to transfer from getting out of bed to the wheelchair. I could see...

Comfort in a Diagnosis

Jul 13, 2014
Comfort in a Diagnosis

Robert has declined so quickly this year and had so many different things going on, my head has been spinning.  I just want to find out what’s wrong!

 

Looks like Robert's appetite is back!

Questions have swirled this year: Why is he getting pneumonia so frequently? Do we use...

Passing Time in the ER

Jul 7, 2014
Passing Time in the ER

Robert came into the hospital last Tuesday.

I am pretty sure today is Monday and, yep, we’re still here.
Rocky Road makes the wait much easier

Anyone who has spent any time at all in the hospital or visiting anyone in the hospital or knows anything about hospitals knows there...

This Doesn’t Sound Good

Jun 25, 2014
This Doesn’t Sound Good



Robert had an appointment with the neurologist Tuesday afternoon. 

It is a day later and I am still processing what happened.  Still kind of spinning, actually. 
We have had a rough few months trying out a new med and fending off an overwhelming amount of congestion(which I see as an oncoming pneumonia train). 

We...

Do you know how to recognize if someone is having seizure? Do you know what to do?

Jun 7, 2014
Do you know how to recognize if someone is having seizure? Do you know what to do?

This bilingual poster, courtesy of the Epilepsy Foundation of Greater Los Angeles, is well worth sharing.  It's important to know it is okay to talk about epilepsy, it is nothing to fear and neither are seizures. It is okay to help and these posters let us know exactly how we can help.

I would like...

Running in Circles

Jun 5, 2014
Running in Circles

Robert has had bronchitis at least four times this year (yep, we added one more) and even when he hasn’t been “officially” diagnosed with it, he has a great deal of congestion.  The past few months he has been sleeping in on the weekends until 11:00, 11:30 – even noon.  Through the week...

Ending the New Medication Experiment

May 29, 2014
Ending the New Medication Experiment

At least Robert is happy when he's eating!

We have been trying the “new” seizure medication, in varying dosages, since February.  Robert’s neurologist thought we should try Trileptal so, in February, started him on 300 mg in the morning and evening.

After a week, we had to give it...

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