Trish Hughes Kreis

Trish Hughes Kreis Robert is my youngest brother and I handle his care. I also have a supportive family (husband and three kids) and a "day job" as a legal administrator for a wonderful law firm (no, that is not an oxymoron). I do some freelance writing as well. Aside from advocating for the best care possible for Robert, I enjoy playing cards with him and listening to his silly jokes. (Robert’s greatest joy seems to be beating me at cards which he does most of the time).

Web Site: http://www.robertssister.com/


Kindness – Every Little Bit Helps

May 10, 2013
Kindness – Every Little Bit Helps

It is sometimes difficult to believe in the goodness of the human race when there is such evil, violence and despicable acts splashed across most news sites.A fond memory of momIt can be difficult to see the goodness even for a Pollyanna like me, espec...

Discombobulated

May 5, 2013
Discombobulated

I love the word “discombobulated.”Only a moment of peace -do not be deceivedJust hearing the word conveys its meaning: confusion.  The word bounces around your mouth as if in a state of confusion itself.  Whenever I say it out loud it tak...

TMT: Too Much Time (Together)

Apr 25, 2013
TMT:  Too Much Time (Together)

Richard and his mom coined the term, “TMT.”Since Richard is his mom’s primary caregiver, they spend a great deal of time together going to doctor appointments which are usually an hour away or during her hospitalizations for surgery or heart-rela...

Dos and Don’ts for Medical Professionals: A Caregiver Perspective

Apr 23, 2013
Dos and Don’ts for Medical Professionals: A Caregiver Perspective

I am very grateful for the care Robert received in the hospital last week but, unfortunately, there were varying degrees of attentiveness and competency.  Much of his treatment and care was wonderful and appreciated but there were a few instances ...

Counting My Blessings

Apr 20, 2013
Counting My Blessings

A week ago Friday, Robert woke up with a temperature of 102, difficulty breathing and unable to sit up without assistance.  EMTs were called, Robert was taken to the emergency room and diagnosed with septic shock and pneumonia.Robert is happy to b...

When Things Are Too Much

Apr 11, 2013

“I was wondering if this would be too much for you.”A friend, Denise Brown, recently asked me this but she wasn’t referring to caring for Robert.  She knows Richard and I can care for Robert and that bringing him into our home was the right ...

What?! Wait! I Have to do Math!?

Apr 8, 2013
What?! Wait! I Have to do Math!?

My biggest concern about moving Robert in with us was the responsibility of his medications.  Will I be able to keep them in stock? Will I remember to give them to him at the right time? Will I be able to organize his refills and keep the Day Prog...

Welcome Home, Robert

Mar 31, 2013
Welcome Home, Robert

No more rationing how many nights Robert can sleep over;No more arranging doctor appointments not only around my schedule, work and when Robert is sleeping over but New Home schedule; Robert's first "official" night home -with a bowl of Rocky Road...

Slaying the Medication Worry

Mar 27, 2013
Slaying the Medication Worry

Medication dispense times per day: 7Four days of Robert's pillsTotal number of pills to give per day: 25Medications to keep filled on time: 9The consequences of screwing this up: severe (increased and/or prolonged seizures, physically hurt from increas...

Preparing for Move-In

Mar 21, 2013
Preparing for Move-In

My checklists have checklists (and that’s on a normal day).Preparing for Robert moving in?  Let’s just say my checklists are having a tough time keeping up.Preparations are well under way and tasks are being crossed off the list at pretty good...



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