Trish Hughes Kreis

Trish Hughes Kreis Robert is my youngest brother and I handle his care. I also have a supportive family (husband and three kids) and a "day job" as a legal administrator for a wonderful law firm (no, that is not an oxymoron). I do some freelance writing as well. Aside from advocating for the best care possible for Robert, I enjoy playing cards with him and listening to his silly jokes. (Robert’s greatest joy seems to be beating me at cards which he does most of the time).

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Holidays, Decorating and Caregiving

Dec 9, 2015
Holidays, Decorating and Caregiving

Readers know how much I love to decorate at Christmas time! This passion for lights, snowmen and holiday cheer could be called over the top or slightly very excessive (Exhibits A, Band C)but I like to call it “normal,” “spreading Christmas joy” and “oh so much fun!”

Caregiving Blog Party 2015

Dec 7, 2015
Caregiving Blog Party 2015

It is that time of year! Grab a cup of hot cocoa, a bag of tiny marshmallows (oh yes, I said a bag) and a few candy canes.  We are going to have fun this week!

Every year, Denise Brown hosts a Blog Party through her site for...

Epilepsy Awareness Month: CTE and Epilepsy – Making the Connection

Nov 21, 2015
Epilepsy Awareness Month:  CTE and Epilepsy – Making the Connection

The connection between blows to the head (even those not resulting in a concussion) and Chronic Traumatic Encephalopathy (CTE) is clear thanks to the persistence, innovation and research of Dr. Bennet Omalu, a forensic pathologist and the doctor who wrote the book, “Play Hard, Die Young: Football Dementia, Depression and Death.”

Epilepsy Awareness Month: 30 Facts about Epilepsy

Nov 15, 2015
Epilepsy Awareness Month:  30 Facts about Epilepsy

A reader of the Robert’s Sister Facebook pagerecently asked if she could share the epilepsy series I did a few years ago (30 Facts in 30 Days). (Of course I said yes!)

Bonus fact: First Aid for Seizures
(courtesy of the Epilepsy Foundation
of Greater Los Angeles)
A friend of...

Epilepsy Awareness Month 2015: A Sea of Advocacy

Nov 11, 2015
Epilepsy Awareness Month 2015: A Sea of Advocacy

Our recent trip to the Epilepsy Awareness Day at Disneylandbrought us face to face with many wonderful and inspiring advocates – all full of life, laughter, education and a passion for managing and curing epilepsy!

Epilepsy Awareness Day at Disneyland not only is a way for families affected by...

Epilepsy Awareness Month 2015: Caregiving. Family. Advocacy.

Nov 1, 2015
Epilepsy Awareness Month 2015: Caregiving. Family. Advocacy.

It is hard to believe it has been seven years since I first started caring for Robert.  In the fall of 2008, Robert had recurring infections and allowed a stranger to live in his house (a homeless woman he and his companion, Judy, met while picking up their prescriptions).  By Thanksgiving, this woman had...

Preparation for Respite Weekend

Oct 27, 2015
Preparation for Respite Weekend

Respite Weekend was a definite success but getting here was no easy feat!

Even though we are officially “entitled” to twelve respite nights per year from Robert’s social services agency, we have not even come close to taking advantage of that.  

Dropping Robert at respite. 
It isn’t even...

Respite Weekend: Declared a Success!

Oct 25, 2015
Respite Weekend: Declared a Success!

Getting to respite was not easy but let’s not focus on that.  (You can read about that on Tuesday.)

Today we are jumping for joy because respite weekend happened and it was a resounding success!

Sure, my plans for respite looked like this in my head:

See a couple of movies;

Go out...

Oh God! We’re Talking About Sex and Caregiving

Oct 11, 2015
Oh God! We’re Talking About Sex and Caregiving

I am seriously uncomfortable talking about sex. To me, this is something that is private and should never be discussed. Ever. Not in a million years. Well, okay, that is an exaggeration.  Of course I talked about sex with the kids – heck, even around the dinner table. But certainly not in every day...

Death, Grief and Dreams

Sep 27, 2015
Death, Grief and Dreams

September 21 was World Alzheimer’s Day.  Alzheimer’s was not something that affected my parents or grandparents or other relatives but it has affected dear friends, their relatives and my dear, delightful, vivacious first Mother-in-Law. 

In honor of this beautiful woman, who was affectionately called “Bib” growing up (and for some reason, I always called her...

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